Question:
Which is probably going to be your best bet, outside of calling the doctor’s offices and finding out how they treat PCO patients, and if its the way you want. Also check and see if they are willing to learn. That’s what I do. Victoria "Boneist" <bone…@blueyonder.co.uk> wrote in message
news:3OgV5.1748$9Z3.158278@news3.cableinet.net… – Hide quoted text — Show quoted text -> I can understand why ob/gyn’s aren’t up on PCO/S… but are there many RE’s > in Britain? I’d never heard of them before coming onto this newsgroup! I’m > concerned that the gynae I’ll eventually see will know nothing about it, and > not do the right thing for me. I shall be going armed with bits of > documents, web pages, etc, so…!! > — > Boneist > ———— > "Scientists have calculated that the chance of anything so patently absurd > actually existing are millions to one. But magicians have calculated that > million-to-one chances crop up nine times out of ten." > (Terry Pratchett – Mort) > Victoria <nich…@mail.cs.odu.edu> wrote in message > news:xEfV5.148505$j6.15967709@news1.rdc1.va.home.com… > > I think I have parts of this one figured this one out: please dont shoot > the > > messenger: > > First: ob/gyn’s probably aren’t going to be up on PCO for several reasons. > > Lets face it: the biggest reason why people go into ob/gyn (if that is > what > > they want) is to deliver babies. Its the most fun part of the job, from my > > understanding. You make more $ off of it. Your patients tend to be more > > cooperative with the doctor. Most of all, its the pace and drive … more > at > > stake, 2 lives versus one. You have to make snap decisions in minutes that > > could end up meaning the difference between life and death. You also get > > C-sections or surgery to do. On top of that: you get your lawsuits pretty > > much come from doing ob. So you are going to keep up on ob stuff. > > Gyn is pretty much routine. The boring stuff. Has anyone checked out the > > Green or Gray Journals, which are for most ob/gyn’s, compared to the Red > > Journal or Fertility and Sterility in regards to articles on things like > > PCO, endometriosis, infertility? There are hardly any articles that really > > get into PCO on a consistent basis. Same for endometriosis (using that as > > another example). So with fewer articles, there is less exposure on it. No > > one has sued a doctor for not using metformin (or similar stuff) for PCO. > > Besides, since ob/gyn is the most lawsuited group of doctors, let the RE’s > > or endocrinologists prescribe off label and ‘untested’ diets, etc. > > I’ve pretty much come to this conclusion, or at least those are parts of > why > > I think ob/gyn’s aren’t up on it. My only thing is: if this is or are part > > of their motives, how can we use this knowledge to our advantage? > > Victoria > > "Jodi Lynn Poniewaz" <poniew…@andrew.cmu.edu> wrote in message > > news:Eu9IVJK00Ui444PrU5@andrew.cmu.edu… > > > i am wondering about this one… so many doctors are so bad about this > > > disease. i know it’s still a poorly misunderstood deisease, but it > > > seems that doctors should at least be up on what is currently believed > > > to be true about it, since it does effect soooo many women. especially > > > gynecologists, you know? i am still kind of seething over my gyne (or > > > is it gyno?) telling me, "you don’t have to worry about PCOS because the > > > only women who have trouble with PCOS are grossly obese and you’re > > > nowhere near that." > > > now, i’m lucky that i have had my nose in research ever since suspecting > > > i have had this… i know she is WRONG. but think if some other girl > > > had gone in there, my size, my age, no periods and growing a beard, and > > > believed her? > > > i think it’s terrible that a gynecologist would say that to someone. > > > has anyone ever like… written letters SOMEHWERE pointing out that a > > > certain doctor is a moron and possibly harming patients? > > > i mean… if you went to a doctor now and had AIDS and he said "you > > > don’t need to worry, the only people who have serious complications from > > > AIDS are gay men, and you’re not a gay man" how well would that fly? > > > not well at all. > > > hrmmm… > > > – jodi
Response:
I got that impression from former doctor’s also. Problem is how do we get them to see us in a different light? Victoria "HopefulDreamer" <hopefuldreame…@hotmail.com> wrote in message
news:t2bhgkhbs6as50@corp.supernews.com… – Hide quoted text — Show quoted text -> What a wonderful point! I went to an ob/gyn for a year, it seemed to me all > he cared about was his ob patients. > rebekah > — > My Infertility and Miscarriage Website at: > http://rebekahmichel19.tripod.com/rebekahsinfo/index.html > "Hope is the thing with feathers, that perches on the soul. Sings the tunes > without words and never fades at all" -emily dickinson > Victoria <nich…@mail.cs.odu.edu> wrote in message > news:xEfV5.148505$j6.15967709@news1.rdc1.va.home.com… > > I think I have parts of this one figured this one out: please dont shoot > the > > messenger: > > First: ob/gyn’s probably aren’t going to be up on PCO for several reasons. > > Lets face it: the biggest reason why people go into ob/gyn (if that is > what > > they want) is to deliver babies. Its the most fun part of the job, from my > > understanding. You make more $ off of it. Your patients tend to be more > > cooperative with the doctor. Most of all, its the pace and drive … more > at > > stake, 2 lives versus one. You have to make snap decisions in minutes that > > could end up meaning the difference between life and death. You also get > > C-sections or surgery to do. On top of that: you get your lawsuits pretty > > much come from doing ob. So you are going to keep up on ob stuff. > > Gyn is pretty much routine. The boring stuff. Has anyone checked out the > > Green or Gray Journals, which are for most ob/gyn’s, compared to the Red > > Journal or Fertility and Sterility in regards to articles on things like > > PCO, endometriosis, infertility? There are hardly any articles that really > > get into PCO on a consistent basis. Same for endometriosis (using that as > > another example). So with fewer articles, there is less exposure on it. No > > one has sued a doctor for not using metformin (or similar stuff) for PCO. > > Besides, since ob/gyn is the most lawsuited group of doctors, let the RE’s > > or endocrinologists prescribe off label and ‘untested’ diets, etc. > > I’ve pretty much come to this conclusion, or at least those are parts of > why > > I think ob/gyn’s aren’t up on it. My only thing is: if this is or are part > > of their motives, how can we use this knowledge to our advantage? > > Victoria > > "Jodi Lynn Poniewaz" <poniew…@andrew.cmu.edu> wrote in message > > news:Eu9IVJK00Ui444PrU5@andrew.cmu.edu… > > > i am wondering about this one… so many doctors are so bad about this > > > disease. i know it’s still a poorly misunderstood deisease, but it > > > seems that doctors should at least be up on what is currently believed > > > to be true about it, since it does effect soooo many women. especially > > > gynecologists, you know? i am still kind of seething over my gyne (or > > > is it gyno?) telling me, "you don’t have to worry about PCOS because the > > > only women who have trouble with PCOS are grossly obese and you’re > > > nowhere near that." > > > now, i’m lucky that i have had my nose in research ever since suspecting > > > i have had this… i know she is WRONG. but think if some other girl > > > had gone in there, my size, my age, no periods and growing a beard, and > > > believed her? > > > i think it’s terrible that a gynecologist would say that to someone. > > > has anyone ever like… written letters SOMEHWERE pointing out that a > > > certain doctor is a moron and possibly harming patients? > > > i mean… if you went to a doctor now and had AIDS and he said "you > > > don’t need to worry, the only people who have serious complications from > > > AIDS are gay men, and you’re not a gay man" how well would that fly? > > > not well at all. > > > hrmmm… > > > – jodi
Response:
I think I have parts of this one figured this one out: please dont shoot the messenger: First: ob/gyn’s probably aren’t going to be up on PCO for several reasons. Lets face it: the biggest reason why people go into ob/gyn (if that is what they want) is to deliver babies. Its the most fun part of the job, from my understanding. You make more $ off of it. Your patients tend to be more cooperative with the doctor. Most of all, its the pace and drive … more at stake, 2 lives versus one. You have to make snap decisions in minutes that could end up meaning the difference between life and death. You also get C-sections or surgery to do. On top of that: you get your lawsuits pretty much come from doing ob. So you are going to keep up on ob stuff. Gyn is pretty much routine. The boring stuff. Has anyone checked out the Green or Gray Journals, which are for most ob/gyn’s, compared to the Red Journal or Fertility and Sterility in regards to articles on things like PCO, endometriosis, infertility? There are hardly any articles that really get into PCO on a consistent basis. Same for endometriosis (using that as another example). So with fewer articles, there is less exposure on it. No one has sued a doctor for not using metformin (or similar stuff) for PCO. Besides, since ob/gyn is the most lawsuited group of doctors, let the RE’s or endocrinologists prescribe off label and ‘untested’ diets, etc. I’ve pretty much come to this conclusion, or at least those are parts of why I think ob/gyn’s aren’t up on it. My only thing is: if this is or are part of their motives, how can we use this knowledge to our advantage? Victoria "Jodi Lynn Poniewaz" <poniew…@andrew.cmu.edu> wrote in message news:Eu9IVJK00Ui444PrU5@andrew.cmu.edu… – Hide quoted text — Show quoted text -> i am wondering about this one… so many doctors are so bad about this > disease. i know it’s still a poorly misunderstood deisease, but it > seems that doctors should at least be up on what is currently believed > to be true about it, since it does effect soooo many women. especially > gynecologists, you know? i am still kind of seething over my gyne (or > is it gyno?) telling me, "you don’t have to worry about PCOS because the > only women who have trouble with PCOS are grossly obese and you’re > nowhere near that." > now, i’m lucky that i have had my nose in research ever since suspecting > i have had this… i know she is WRONG. but think if some other girl > had gone in there, my size, my age, no periods and growing a beard, and > believed her? > i think it’s terrible that a gynecologist would say that to someone. > has anyone ever like… written letters SOMEHWERE pointing out that a > certain doctor is a moron and possibly harming patients? > i mean… if you went to a doctor now and had AIDS and he said "you > don’t need to worry, the only people who have serious complications from > AIDS are gay men, and you’re not a gay man" how well would that fly? > not well at all. > hrmmm… > – jodi
Response:
I can understand why ob/gyn’s aren’t up on PCO/S… but are there many RE’s in Britain? I’d never heard of them before coming onto this newsgroup! I’m concerned that the gynae I’ll eventually see will know nothing about it, and not do the right thing for me. I shall be going armed with bits of documents, web pages, etc, so…!! — Boneist ———— "Scientists have calculated that the chance of anything so patently absurd actually existing are millions to one. But magicians have calculated that million-to-one chances crop up nine times out of ten." (Terry Pratchett – Mort) Victoria <nich…@mail.cs.odu.edu> wrote in message
news:xEfV5.148505$j6.15967709@news1.rdc1.va.home.com… – Hide quoted text — Show quoted text -> I think I have parts of this one figured this one out: please dont shoot the > messenger: > First: ob/gyn’s probably aren’t going to be up on PCO for several reasons. > Lets face it: the biggest reason why people go into ob/gyn (if that is what > they want) is to deliver babies. Its the most fun part of the job, from my > understanding. You make more $ off of it. Your patients tend to be more > cooperative with the doctor. Most of all, its the pace and drive … more at > stake, 2 lives versus one. You have to make snap decisions in minutes that > could end up meaning the difference between life and death. You also get > C-sections or surgery to do. On top of that: you get your lawsuits pretty > much come from doing ob. So you are going to keep up on ob stuff. > Gyn is pretty much routine. The boring stuff. Has anyone checked out the > Green or Gray Journals, which are for most ob/gyn’s, compared to the Red > Journal or Fertility and Sterility in regards to articles on things like > PCO, endometriosis, infertility? There are hardly any articles that really > get into PCO on a consistent basis. Same for endometriosis (using that as > another example). So with fewer articles, there is less exposure on it. No > one has sued a doctor for not using metformin (or similar stuff) for PCO. > Besides, since ob/gyn is the most lawsuited group of doctors, let the RE’s > or endocrinologists prescribe off label and ‘untested’ diets, etc. > I’ve pretty much come to this conclusion, or at least those are parts of why > I think ob/gyn’s aren’t up on it. My only thing is: if this is or are part > of their motives, how can we use this knowledge to our advantage? > Victoria > "Jodi Lynn Poniewaz" <poniew…@andrew.cmu.edu> wrote in message > news:Eu9IVJK00Ui444PrU5@andrew.cmu.edu… > > i am wondering about this one… so many doctors are so bad about this > > disease. i know it’s still a poorly misunderstood deisease, but it > > seems that doctors should at least be up on what is currently believed > > to be true about it, since it does effect soooo many women. especially > > gynecologists, you know? i am still kind of seething over my gyne (or > > is it gyno?) telling me, "you don’t have to worry about PCOS because the > > only women who have trouble with PCOS are grossly obese and you’re > > nowhere near that." > > now, i’m lucky that i have had my nose in research ever since suspecting > > i have had this… i know she is WRONG. but think if some other girl > > had gone in there, my size, my age, no periods and growing a beard, and > > believed her? > > i think it’s terrible that a gynecologist would say that to someone. > > has anyone ever like… written letters SOMEHWERE pointing out that a > > certain doctor is a moron and possibly harming patients? > > i mean… if you went to a doctor now and had AIDS and he said "you > > don’t need to worry, the only people who have serious complications from > > AIDS are gay men, and you’re not a gay man" how well would that fly? > > not well at all. > > hrmmm… > > – jodi
Response:
Excerpts from netnews.alt.support.pco: 29-Nov-100 Re: Wrong test? by "Victoria"@mail.cs.odu.e > You can always ask your doctor where he is getting his/her info and what > year it is from. Then challenge them with some of the latest articles on > metformin. Ask them why and what they base their info on. I find that gets a > rise out of them. It may not be the rise you want, but this sounds like a > doctor who can hurt his patients because he/she refuses to keep up with > medical advances.
i am wondering about this one… so many doctors are so bad about this disease. i know it’s still a poorly misunderstood deisease, but it seems that doctors should at least be up on what is currently believed to be true about it, since it does effect soooo many women. especially gynecologists, you know? i am still kind of seething over my gyne (or is it gyno?) telling me, "you don’t have to worry about PCOS because the only women who have trouble with PCOS are grossly obese and you’re nowhere near that." now, i’m lucky that i have had my nose in research ever since suspecting i have had this… i know she is WRONG. but think if some other girl had gone in there, my size, my age, no periods and growing a beard, and believed her? i think it’s terrible that a gynecologist would say that to someone. has anyone ever like… written letters SOMEHWERE pointing out that a certain doctor is a moron and possibly harming patients? i mean… if you went to a doctor now and had AIDS and he said "you don’t need to worry, the only people who have serious complications from AIDS are gay men, and you’re not a gay man" how well would that fly? not well at all. hrmmm… – jodi
Response:
Jodi is right on that one. In addition: metformin and other insulin sensitizers have been used for something like 7 years for PCO. In addition, you can go back longer than that in the endocrinology journals and start seeing insulin resistance and PCO being linked. You can always ask your doctor where he is getting his/her info and what year it is from. Then challenge them with some of the latest articles on metformin. Ask them why and what they base their info on. I find that gets a rise out of them. It may not be the rise you want, but this sounds like a doctor who can hurt his patients because he/she refuses to keep up with medical advances. Victoria "Jodi Lynn Poniewaz" <poniew…@andrew.cmu.edu> wrote in message news:wu92ci600Ui8M936h5@andrew.cmu.edu… – Hide quoted text — Show quoted text -> they are the wrong tests. complete blood count … i am unsure what a > chem 14 is off hand. but i assume the things he checked were stuff like > iron, potassium, reb blood cells, white blood cells, stuff like that. > you need to have HORMONE levels checks … and insulin , if your doc > has a clue. most docs don’t, a fact i am finding incredibly > frutstrating. > > This doctor she’s seeing now even told her that treating PCOS with = > > insulin reducing drugs was "highly experimental". I don’t believe that’s = > > right. Is it?=20 > my PCP told me the exact same thing. the idiot gyne that i went to told > me the same thing. both wanted to hand me birth control pills and > spirolactone, both of which i have already tried with negative effects. > i mean, bad side effects… > insulin sensitisers are experimental in that the FDA has not approved > them yet and most docs are unwilling to give them a go. most docs will > not even address the insulin issue, it seems… i can’t even get mine > to order the damn test. however, on this board and other support boards > (like the one on pcosupport.org… well, not really on it but linked to > it…) you will read of bunches of women who are taking insulin drugs > with great success. it really annoys me that certain doctors won’t even > acknowledge this and at least allow a patient the chance to TRY a > (relatively safe & harmless) drug that might treat the underlaying cause > of PCOS… but they WILL allow them to take drugs with nasty, horrid > side effects! > – jodi > <*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>=<*> > it was only fantasy – the wall was too high, as you can see > no matter how he tried, he could not break free > and the worms ate into his brain… > – pink floyd > <*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>
Response:
What a wonderful point! I went to an ob/gyn for a year, it seemed to me all he cared about was his ob patients. rebekah — My Infertility and Miscarriage Website at: http://rebekahmichel19.tripod.com/rebekahsinfo/index.html "Hope is the thing with feathers, that perches on the soul. Sings the tunes without words and never fades at all" -emily dickinson Victoria <nich…@mail.cs.odu.edu> wrote in message
news:xEfV5.148505$j6.15967709@news1.rdc1.va.home.com… – Hide quoted text — Show quoted text -> I think I have parts of this one figured this one out: please dont shoot the > messenger: > First: ob/gyn’s probably aren’t going to be up on PCO for several reasons. > Lets face it: the biggest reason why people go into ob/gyn (if that is what > they want) is to deliver babies. Its the most fun part of the job, from my > understanding. You make more $ off of it. Your patients tend to be more > cooperative with the doctor. Most of all, its the pace and drive … more at > stake, 2 lives versus one. You have to make snap decisions in minutes that > could end up meaning the difference between life and death. You also get > C-sections or surgery to do. On top of that: you get your lawsuits pretty > much come from doing ob. So you are going to keep up on ob stuff. > Gyn is pretty much routine. The boring stuff. Has anyone checked out the > Green or Gray Journals, which are for most ob/gyn’s, compared to the Red > Journal or Fertility and Sterility in regards to articles on things like > PCO, endometriosis, infertility? There are hardly any articles that really > get into PCO on a consistent basis. Same for endometriosis (using that as > another example). So with fewer articles, there is less exposure on it. No > one has sued a doctor for not using metformin (or similar stuff) for PCO. > Besides, since ob/gyn is the most lawsuited group of doctors, let the RE’s > or endocrinologists prescribe off label and ‘untested’ diets, etc. > I’ve pretty much come to this conclusion, or at least those are parts of why > I think ob/gyn’s aren’t up on it. My only thing is: if this is or are part > of their motives, how can we use this knowledge to our advantage? > Victoria > "Jodi Lynn Poniewaz" <poniew…@andrew.cmu.edu> wrote in message > news:Eu9IVJK00Ui444PrU5@andrew.cmu.edu… > > i am wondering about this one… so many doctors are so bad about this > > disease. i know it’s still a poorly misunderstood deisease, but it > > seems that doctors should at least be up on what is currently believed > > to be true about it, since it does effect soooo many women. especially > > gynecologists, you know? i am still kind of seething over my gyne (or > > is it gyno?) telling me, "you don’t have to worry about PCOS because the > > only women who have trouble with PCOS are grossly obese and you’re > > nowhere near that." > > now, i’m lucky that i have had my nose in research ever since suspecting > > i have had this… i know she is WRONG. but think if some other girl > > had gone in there, my size, my age, no periods and growing a beard, and > > believed her? > > i think it’s terrible that a gynecologist would say that to someone. > > has anyone ever like… written letters SOMEHWERE pointing out that a > > certain doctor is a moron and possibly harming patients? > > i mean… if you went to a doctor now and had AIDS and he said "you > > don’t need to worry, the only people who have serious complications from > > AIDS are gay men, and you’re not a gay man" how well would that fly? > > not well at all. > > hrmmm… > > – jodi
Response:
Excerpts from netnews.alt.support.pco: 27-Nov-100 Wrong test? by "Kamelot"@busprod.com > A friend of my called today to tell me that she got her blood test = > results back today. She has several of the PCOS symptoms, and mentioned = > it to her doctor. So he ordered up a CBC and a Chem. 14. Um, well, the = > nurse called back and said, "Nothing here is out of whack, it all looks = > normal. You don’t have PCOS."=20 > Is it just me, or aren’t these the wrong tests? I know my doc determined = > that I have it by doing a fasting insulin level. This friend even had a = > laparoscopy done about 10 years ago, and said her ovaries looked like = > golf balls. (She was ttc at the time.) Wouldn’t this indicate that she = > definitely has cysts? I believe that the doc that did the laparoscopy = > even told her they were ovarian cysts.=20
they are the wrong tests. complete blood count … i am unsure what a chem 14 is off hand. but i assume the things he checked were stuff like iron, potassium, reb blood cells, white blood cells, stuff like that. you need to have HORMONE levels checks … and insulin , if your doc has a clue. most docs don’t, a fact i am finding incredibly frutstrating. > This doctor she’s seeing now even told her that treating PCOS with = > insulin reducing drugs was "highly experimental". I don’t believe that’s = > right. Is it?=20
my PCP told me the exact same thing. the idiot gyne that i went to told me the same thing. both wanted to hand me birth control pills and spirolactone, both of which i have already tried with negative effects. i mean, bad side effects… insulin sensitisers are experimental in that the FDA has not approved them yet and most docs are unwilling to give them a go. most docs will not even address the insulin issue, it seems… i can’t even get mine to order the damn test. however, on this board and other support boards (like the one on pcosupport.org… well, not really on it but linked to it…) you will read of bunches of women who are taking insulin drugs with great success. it really annoys me that certain doctors won’t even acknowledge this and at least allow a patient the chance to TRY a (relatively safe & harmless) drug that might treat the underlaying cause of PCOS… but they WILL allow them to take drugs with nasty, horrid side effects! – jodi <*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>=<*> it was only fantasy – the wall was too high, as you can see no matter how he tried, he could not break free and the worms ate into his brain… – pink floyd <*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>
Response:
Thanks, and well said! I feel exactly the same frustration! It took 4 years to find a doc with the balls to do something about treatment! Kathy "Jodi Lynn Poniewaz" <poniew…@andrew.cmu.edu> wrote in message – Hide quoted text — Show quoted text -> they are the wrong tests. complete blood count … i am unsure what a > chem 14 is off hand. but i assume the things he checked were stuff like > iron, potassium, reb blood cells, white blood cells, stuff like that. > you need to have HORMONE levels checks … and insulin , if your doc > has a clue. most docs don’t, a fact i am finding incredibly > frutstrating. > > This doctor she’s seeing now even told her that treating PCOS with = > > insulin reducing drugs was "highly experimental". I don’t believe that’s = > > right. Is it?=20 > my PCP told me the exact same thing. the idiot gyne that i went to told > me the same thing. both wanted to hand me birth control pills and > spirolactone, both of which i have already tried with negative effects. > i mean, bad side effects… > insulin sensitisers are experimental in that the FDA has not approved > them yet and most docs are unwilling to give them a go. most docs will > not even address the insulin issue, it seems… i can’t even get mine > to order the damn test. however, on this board and other support boards > (like the one on pcosupport.org… well, not really on it but linked to > it…) you will read of bunches of women who are taking insulin drugs > with great success. it really annoys me that certain doctors won’t even > acknowledge this and at least allow a patient the chance to TRY a > (relatively safe & harmless) drug that might treat the underlaying cause > of PCOS… but they WILL allow them to take drugs with nasty, horrid > side effects! > – jodi > <*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>=<*> > it was only fantasy – the wall was too high, as you can see > no matter how he tried, he could not break free > and the worms ate into his brain… > – pink floyd > <*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>=<*>
Response:
I don’t even kow what those tests are for.. I have never had them done, or at least the names don’t sound familiar if I did have them done. Are these the only tests they did on her? I would definatly let her know about the other hormone bloods to be taken. I think there is a list of tests that should be taken at psosupport.org. If doc decides that they are not going to do that. I think it would be a fine time to find a new doc… I hope for the best for your friend. Sounds like your a great friend!!! God Bless, Tracy – Hide quoted text — Show quoted text -Kamelot wrote: > A friend of my called today to tell me that she got her blood test > results back today. She has several of the PCOS symptoms, and > mentioned it to her doctor. So he ordered up a CBC and a Chem. 14. Um, > well, the nurse called back and said, "Nothing here is out of whack, > it all looks normal. You don’t have PCOS." Is it just me, or aren’t > these the wrong tests? I know my doc determined that I have it by > doing a fasting insulin level. This friend even had a laparoscopy done > about 10 years ago, and said her ovaries looked like golf balls. (She > was ttc at the time.) Wouldn’t this indicate that she definitely has > cysts? I believe that the doc that did the laparoscopy even told her > they were ovarian cysts. This doctor she’s seeing now even told her > that treating PCOS with insulin reducing drugs was "highly > experimental". I don’t believe that’s right. Is it? Man, that really > chapped me when she told me! Just venting…Kathy
Response:
She should request to get a testosterone and progesterone levels checked. My testosterone was in the high range and progesterone was low. my doctor, personally, diagnosed me by looking at all my symptoms. PCOS stands for polycystic ovarian SYNDROME and a syndrome is defined as a "collection of symptoms" so if she has even some of the symptoms she can be defined as PCOS. To confirm for sure an ultrasound would be done. But my understanding is that PCOS is like acne, some months you break out others you dont. So if she gets the ultrasound(or any tests done I believe)it might not show PCOS but it doesnt rule it out! Tell her to keep trying, when in doubt seek a second opinion(hopefully from a doc who knows a little more about PCOS)
rebekah — "hope is the thing with feathers, that perches on the soul. Sings the tunes without words and never fades at all" -emily dickinson Kamelot <langs…@busprod.com> wrote in message news:O0HU5.695$c52.80343@news1.primary.net… A friend of my called today to tell me that she got her blood test results back today. She has several of the PCOS symptoms, and mentioned it to her doctor. So he ordered up a CBC and a Chem. 14. Um, well, the nurse called back and said, "Nothing here is out of whack, it all looks normal. You don’t have PCOS." Is it just me, or aren’t these the wrong tests? I know my doc determined that I have it by doing a fasting insulin level. This friend even had a laparoscopy done about 10 years ago, and said her ovaries looked like golf balls. (She was ttc at the time.) Wouldn’t this indicate that she definitely has cysts? I believe that the doc that did the laparoscopy even told her they were ovarian cysts. This doctor she’s seeing now even told her that treating PCOS with insulin reducing drugs was "highly experimental". I don’t believe that’s right. Is it? Man, that really chapped me when she told me! Just venting… Kathy
Response:
A friend of my called today to tell me that she got her blood test results back today. She has several of the PCOS symptoms, and mentioned it to her doctor. So he ordered up a CBC and a Chem. 14. Um, well, the nurse called back and said, "Nothing here is out of whack, it all looks normal. You don’t have PCOS." Is it just me, or aren’t these the wrong tests? I know my doc determined that I have it by doing a fasting insulin level. This friend even had a laparoscopy done about 10 years ago, and said her ovaries looked like golf balls. (She was ttc at the time.) Wouldn’t this indicate that she definitely has cysts? I believe that the doc that did the laparoscopy even told her they were ovarian cysts. This doctor she’s seeing now even told her that treating PCOS with insulin reducing drugs was "highly experimental". I don’t believe that’s right. Is it? Man, that really chapped me when she told me! Just venting… Kathy
