Question:
Hi Violet, Thanx for the suggestion. I think I’ll make an appt this week to go and talk to him. The gyn that I saw will send a consultation report to my gp to keep him up to date on what’s going on. He does know surgery is not something I want nor is having a hyst. I will talk to him about other alternatives, but I do know that he feels a diagnosis needs to be made and if surgery is the only way to get a diagnosis then that will have to be my next step. I will be making all my drs know that nothing will be removed that doesn’t need to be. I do think I need to feel more comfortable with this whole situation before I can decide on what to do. Thanx for bringing up my gp, I think that will be a good place to start on finding out all my options for before surgery and after. thanx for the advice, I will be using it. Jewel
– Hide quoted text — Show quoted text – I haven’t posted here in a long time, but I’m hoping someone here can help me. I am now on my 2 gyn, the first one put me on bcp’s. He said I probably have endo, and the pill should help with the pain. I took it for 3 months getting sicker and sicker, but hoping it would start helping. I went in to see my gi( btw, I have crohns disease) who told me to stop taking them because they were definately flaring my cd, and referred me to another gyn who specializes in things like endo. He seemed quite knowledgable, and very caring. He was very gentle while doing the internal exam, and said something is very wrong and left the room. When he came back he said he’s sending me to a urologist to get urodynamics and a cystoscope done. He thinks I might also have ic. He then went on to say that surgery will be inevitable,something about adenomyosis(sp) and chances are they will have to take out my uterus. I tried asking him questions but he just answered them generally and pretty much said he needs to know what the urologist says first. This really scares me, I’m grateful my DH came with me because I don’t think I could have handled it alone. I don’t understand why they’d take my uterus. I’m also not ready for another surgery(mentally) I already have had 2 for my crohns and would have to have another laporotomy, which would mean many weeks of healing. So my question is, does this sound right?? I really don’t want any more taken out of me then necessary. I don’t understand this adenomyosis either, and why he’d think I have it.. Any opinions or suggestions would be grately appreciated. I am very confused and terrified at the same time. TIA, Jewel Hi, {{{{{Jewel}}}}}. I don’t know much about IC and nothing about adenomyosis, but I know what it’s like to be scared and confused, and you’re in my prayers. I’m glad your DH is there to support you through this. If I were in your position, I think I’d be having a conversation with my PCP and asking for another consult, though you should probably have the requested tests done, to try to confirm some of what this doctor apparently suspects. You might explain that you don’t want to have to try to gear up mentally for a hysterectomy unless all the other options have been exhausted. When I had to have mine done, at first I was very upset with the surgeon, who was, I thought, a little too quick to say I needed to have surgery. I had two or three chats with my PCP and a number of tests done before I was comfortable that I really did need to have the surgery. I should add that all the doctors (and nurses) I talked to — including that surgeon I was so unhappy with — were very patient and very willing to help me understand what was wrong with me and how it should be dealt with. I think my level of comfort with the diagnosis and treatment plan was a big part of my quick recovery. But I think it’s very smart to have the tests and try to pin down a little more clearly what the problem is, and then you’ll know what you should expect. Take care of yourself, and keep us posted. Before you buy.
Response:
Hi Kim, You’re very right, I do have lots going on at the same time. I have had crohns disease for over 10 years now,and my symptoms from it are very distinguishable for me. The menstrual symptoms and bladder stuff is alot more new to me, and I don’t know what is caused from what. It does make sense to check out my bladder and see if there is something wrong there before going on to have surgery,but if they find I do have ic, he will still do the surgery. I guess I have just thought all my symptoms were related to one specific thing, and not 2 seperate issues. I would like nothing more than an alternative for surgery, but I’m starting to accept that they’re at least gonna have to go in to see what’s going on. Cbcp’s are not an option for me, I tried bcp’s for 3 months and it aggravated my crohns, which I also need to get under control. My crohns is a concern as well. I just feel so overwhelmed. It has been hard enough to just deal with crohns. thanx for replying, it’s good to know that others are dealing with the same types of issues. At least I know I’m not alone. Jewel
– Hide quoted text — Show quoted text – Jewel, It sounds like you have a lot of things going on and the pain from each may be overlapping. If this is your first Lap for possible endo your doctor sounds like he’s on the ball and wants to cover a lot of ground. It may have been too much too soon as all the info can be very overwhelming! I don’t have IC so I really can’t tell you what the symptoms are or why your doctor feels you may have it, but do have the tests done, it’s better to find out now rather than after a serious complication arises. I have had endo on my bladder, which is also very painful. The thing with Endo, and I am sure you know most of this by now, is that a doctor really can’t tell how extenxive yours is until he/she see’s it with there own eyes. I do know that there are pain symptoms for Adenomyosis BUT I’ve had endo for 20 yrs and Adenomyosis has only recently come up. I really can’t tell where one pain ends and another begins. The Adeno my discovered during a lap I had in Oct 99. My entire uterus is covered with bright/blood red endo. Looks like one giant leasion. It was deep tissue biopsies that showed adenomyosis. Which is Endo that gets into the muscle of the uterus and basically destroys it. My uterus was not mushy as far as I know. I have not had a hyst yet either. Since a lap was all that was set up and I did not sign consent for a hyst, nor was there a life threatening reason to do one. We also didn’t find out everything until the pathology reports came back. So if you are not ready, don’t do it just yet. You have time. I was able to take continuous BCPills (loestrin fe) for a year before the pain started to really come back. A year may not seem like a long time but to those of us that suffer constantly a year can feel like forever. It also gave me a full year to come to terms with the actual Hyst and all it meant. Mine is now scheduled for Jan 2001. But I am really glad I had the year to truly decide what is best for me and my family. I guess what I am trying to say is find out as much as you can. Have the tests, have a lap, you don’t have to consent to a hyst if you are not ready. It took you years to get to this point of pain, time is something you really do have!!!! Good Luck! Kimb
Response:
Hi Carey, thanx for the links they helped alot. I never knew anything about adenomyosis, and after reading, it sounds like I have alot of the symptoms for it. I guess him telling me I need surgery and probably removing my uterus was just too much for me to absorb. I was expecting him to tell me it was just in my head. I know he felt something wrong while doing the exam, and then hearing the words surgery and removal just made this whole thing just too real. I now have to decide what to do, and I don’t like the options I have to chose from. thanx again for all the info, it helped me tremendously, Jewel
– Hide quoted text — Show quoted text – Hi Jewel, What your doctor is saying does sound right if he is suspecting IC and Adenomyosis from your symptoms. I wanted to give you some links for info on IC as well as adenomyosis. A doctor can sometimes feel a uterus with adenomyosis due to the heavy or full or large or boggy feeling. It can also be suspected from symptoms, however, the only sure way to diagnose it is to remove the uterus and then send a biopsy in from that. That would be why he is saying a hysterectomy would be necessary. The only cure for adenomyosis is removing the uterus. There is no cure for endo however, at this time. If you don’t have the symptoms of adeno then I would ask the doc not to remove the uterus at this time, unless of course, he gets in there and it appears to be enlarged and look boggy to him and you have ok’d it before surgery. It is very possible that it is just endometriosis and adhesions or endo on the nerves, etc… that is causing the problems and not adenomyosis. Adenomyosis is endo embedded in the muscle wall of the uterus. However, the doctor should still be prepared to remove all endo he finds at the time of surgery. All endo must be removed to give you relief. You mentioned he was going to do a laparotomy and sometimes endo is extensive enough with adhesions and all that it is necessary, however, if he is able to remove the endo that he finds (if he finds any) without doing the laparotomy you will have a quicker healing time. However, it is sometimes necessary to do the laparotomy due to the location of the endo implants or adhesions or organs that are stuck places they shouldn’t be, as well as any other problems that might crop up. He should be able to start with a laparoscopy though and then proceed with the laparotomy if necessary. Below are the links on IC and Adeno… I hope they are helpful. I wish you the best and I hope you find relief soon. Interstitial Cystitis info: http://www.ic-network.com/ http://www.moonstar.com/~icickay/ http://www.ichelp.org/ Adenomyosis info: www.drcook.com/adca14.html http://www.centerforendo.com/news/adenomyosis/adenomyosis.htm Take care, Carey– John’s page: MENDO – Men and Endometriosis: http://www.geocities.com/HotSprings/Spa/8449/ Carey’s Endo Window with Endo Sister’s Survival Kit: http://www.geocities.com/HotSprings/Spa/8509/ I haven’t posted here in a long time, but I’m hoping someone here can help me. I am now on my 2 gyn, the first one put me on bcp’s. He said I probably have endo, and the pill should help with the pain. I took it for 3 months getting sicker and sicker, but hoping it would start helping. I went in to see my gi( btw, I have crohns disease) who told me to stop taking them because they were definately flaring my cd, and referred me to another gyn who specializes in things like endo. He seemed quite knowledgable, and very caring. He was very gentle while doing the internal exam, and said something is very wrong and left the room. When he came back he said he’s sending me to a urologist to get urodynamics and a cystoscope done. He thinks I might also have ic. He then went on to say that surgery will be inevitable,something about adenomyosis(sp) and chances are they will have to take out my uterus. I tried asking him questions but he just answered them generally and pretty much said he needs to know what the urologist says first. This really scares me, I’m grateful my DH came with me because I don’t think I could have handled it alone. I don’t understand why they’d take my uterus. I’m also not ready for another surgery(mentally) I already have had 2 for my crohns and would have to have another laporotomy, which would mean many weeks of healing. So my question is, does this sound right?? I really don’t want any more taken out of me then necessary. I don’t understand this adenomyosis either, and why he’d think I have it.. Any opinions or suggestions would be grately appreciated. I am very confused and terrified at the same time. TIA, Jewel
Response:
Hi Robin, I do have many bladder symptoms, my bladder always feels full and I can’t empty it. In order to urinate I have to lean forward and even then it not much more than a dribble. It also burns and I have been tested over and over again for bladder infections and it always comes back normal. I wouldn’t mind having a hyst. if it could guarantee the pain would be gone, but I know they can’t guarantee that. I also know I can’t live like this much longer, my quality of life is at its lowest. My crohns is out of control as well and don’t have the option of bcp’s anymore because of the cd. I was led to believe by my gastro doc that because I have had 2 laporotomies done already, it would be very hard for them to do a lap,and chances are I would end up with another laporotomy. I am just so confused about everything. It has been just so much to digest all at once. I think I will discuss getting another opinion before going ahead with surgery, but I hate the idea of having to wait even longer before anything can be done. Thanx for the help Jewel
– Hide quoted text — Show quoted text – Jewel, First of all, why does he think you have IC? Do you have bladder symptoms? It is my understanding (as they were saying I had it based on urodynamics, but the Cysto didn’t say for sure) that they need to do these tests before they can say. If you have symptoms of burning, spasms, etc. but the urine cultures are negative for bladder infection, this can suggest it, but can’t say for sure that it is IC. The uterus can have a boggy feeling and be enlarged with adenomyosis. Could be this is what he is feeling. My advice to you is if you don’t want a hyst., don’t do it. The only way to diagnose Adeno is with a hyst. and pathological examination of the uterus. Also, if this Dr. can’t do the surgery via laparoscopy, then I would question this as well. The great majority of surgeries, even hysts. can be done via laparoscopy. I know a woman that had a hyst. done by laparoscopy, and her uterus was defined as being, "a sack of golf balls." I saw the pictures and it was amazing to see. It was quite large. Maybe another opinion with another Dr. is in order. I know this is where you were sent, but if you have any reservations at all, then get another opinion. This is your body and your right! Feel better. Robin Path: lobby!newstf02.news.aol.com!portc01.blue.aol.com!logbridge.uoregon.edu!ne wsfeed.direct.ca!look.ca!newshub2.rdc1.sfba.home.com!news.home.com!news1.r dc1.mb.home.com.POSTED!not-for-mail Newsgroups: alt.support.endometriosis Lines: 30 X-Priority: 3 X-MSMail-Priority: Normal X-Newsreader: Microsoft Outlook Express 5.50.4133.2400 X-MimeOLE: Produced By Microsoft MimeOLE V5.50.4133.2400 NNTP-Posting-Host: 24.66.50.243 X-Trace: news1.rdc1.mb.home.com 975783443 24.66.50.243 (Sat, 02 Dec 2000 10:57:23 PST)
http://home.com/faster – Hide quoted text — Show quoted text – I haven’t posted here in a long time, but I’m hoping someone here can help me. I am now on my 2 gyn, the first one put me on bcp’s. He said I probably have endo, and the pill should help with the pain. I took it for 3 months getting sicker and sicker, but hoping it would start helping. I went in to see my gi( btw, I have crohns disease) who told me to stop taking them because they were definately flaring my cd, and referred me to another gyn who specializes in things like endo. He seemed quite knowledgable, and very caring. He was very gentle while doing the internal exam, and said something is very wrong and left the room. When he came back he said he’s sending me to a urologist to get urodynamics and a cystoscope done. He thinks I might also have ic. He then went on to say that surgery will be inevitable,something about adenomyosis(sp) and chances are they will have to take out my uterus. I tried asking him questions but he just answered them generally and pretty much said he needs to know what the urologist says first. This really scares me, I’m grateful my DH came with me because I don’t think I could have handled it alone. I don’t understand why they’d take my uterus. I’m also not ready for another surgery(mentally) I already have had 2 for my crohns and would have to have another laporotomy, which would mean many weeks of healing. So my question is, does this sound right?? I really don’t want any more taken out of me then necessary. I don’t understand this adenomyosis either, and why he’d think I have it.. Any opinions or suggestions would be grately appreciated. I am very confused and terrified at the same time. TIA, Jewel I am *not* a Medical Doctor (MD) or *any* other type of Medical Professional. PLEASE consult your own Dr. for medical advice. The information posted is information I have learned from researching or learning from my own
disease.
Response:
– Hide quoted text — Show quoted text – I haven’t posted here in a long time, but I’m hoping someone here can help me. I am now on my 2 gyn, the first one put me on bcp’s. He said I probably have endo, and the pill should help with the pain. I took it for 3 months getting sicker and sicker, but hoping it would start helping. I went in to see my gi( btw, I have crohns disease) who told me to stop taking them because they were definately flaring my cd, and referred me to another gyn who specializes in things like endo. He seemed quite knowledgable, and very caring. He was very gentle while doing the internal exam, and said something is very wrong and left the room. When he came back he said he’s sending me to a urologist to get urodynamics and a cystoscope done. He thinks I might also have ic. He then went on to say that surgery will be inevitable,something about adenomyosis(sp) and chances are they will have to take out my uterus. I tried asking him questions but he just answered them generally and pretty much said he needs to know what the urologist says first. This really scares me, I’m grateful my DH came with me because I don’t think I could have handled it alone. I don’t understand why they’d take my uterus. I’m also not ready for another surgery(mentally) I already have had 2 for my crohns and would have to have another laporotomy, which would mean many weeks of healing. So my question is, does this sound right?? I really don’t want any more taken out of me then necessary. I don’t understand this adenomyosis either, and why he’d think I have it.. Any opinions or suggestions would be grately appreciated. I am very confused and terrified at the same time. TIA, Jewel
Hi, {{{{{Jewel}}}}}. I don’t know much about IC and nothing about adenomyosis, but I know what it’s like to be scared and confused, and you’re in my prayers. I’m glad your DH is there to support you through this. If I were in your position, I think I’d be having a conversation with my PCP and asking for another consult, though you should probably have the requested tests done, to try to confirm some of what this doctor apparently suspects. You might explain that you don’t want to have to try to gear up mentally for a hysterectomy unless all the other options have been exhausted. When I had to have mine done, at first I was very upset with the surgeon, who was, I thought, a little too quick to say I needed to have surgery. I had two or three chats with my PCP and a number of tests done before I was comfortable that I really did need to have the surgery. I should add that all the doctors (and nurses) I talked to — including that surgeon I was so unhappy with — were very patient and very willing to help me understand what was wrong with me and how it should be dealt with. I think my level of comfort with the diagnosis and treatment plan was a big part of my quick recovery. But I think it’s very smart to have the tests and try to pin down a little more clearly what the problem is, and then you’ll know what you should expect. Take care of yourself, and keep us posted. Before you buy.
Response:
Jewel, It sounds like you have a lot of things going on and the pain from each may be overlapping. If this is your first Lap for possible endo your doctor sounds like he’s on the ball and wants to cover a lot of ground. It may have been too much too soon as all the info can be very overwhelming! I don’t have IC so I really can’t tell you what the symptoms are or why your doctor feels you may have it, but do have the tests done, it’s better to find out now rather than after a serious complication arises. I have had endo on my bladder, which is also very painful. The thing with Endo, and I am sure you know most of this by now, is that a doctor really can’t tell how extenxive yours is until he/she see’s it with there own eyes. I do know that there are pain symptoms for Adenomyosis BUT I’ve had endo for 20 yrs and Adenomyosis has only recently come up. I really can’t tell where one pain ends and another begins. The Adeno my discovered during a lap I had in Oct 99. My entire uterus is covered with bright/blood red endo. Looks like one giant leasion. It was deep tissue biopsies that showed adenomyosis. Which is Endo that gets into the muscle of the uterus and basically destroys it. My uterus was not mushy as far as I know. I have not had a hyst yet either. Since a lap was all that was set up and I did not sign consent for a hyst, nor was there a life threatening reason to do one. We also didn’t find out everything until the pathology reports came back. So if you are not ready, don’t do it just yet. You have time. I was able to take continuous BCPills (loestrin fe) for a year before the pain started to really come back. A year may not seem like a long time but to those of us that suffer constantly a year can feel like forever. It also gave me a full year to come to terms with the actual Hyst and all it meant. Mine is now scheduled for Jan 2001. But I am really glad I had the year to truly decide what is best for me and my family. I guess what I am trying to say is find out as much as you can. Have the tests, have a lap, you don’t have to consent to a hyst if you are not ready. It took you years to get to this point of pain, time is something you really do have!!!! Good Luck! Kimb
Response:
Hi Jewel, What your doctor is saying does sound right if he is suspecting IC and Adenomyosis from your symptoms. I wanted to give you some links for info on IC as well as adenomyosis. A doctor can sometimes feel a uterus with adenomyosis due to the heavy or full or large or boggy feeling. It can also be suspected from symptoms, however, the only sure way to diagnose it is to remove the uterus and then send a biopsy in from that. That would be why he is saying a hysterectomy would be necessary. The only cure for adenomyosis is removing the uterus. There is no cure for endo however, at this time. If you don’t have the symptoms of adeno then I would ask the doc not to remove the uterus at this time, unless of course, he gets in there and it appears to be enlarged and look boggy to him and you have ok’d it before surgery. It is very possible that it is just endometriosis and adhesions or endo on the nerves, etc… that is causing the problems and not adenomyosis. Adenomyosis is endo embedded in the muscle wall of the uterus. However, the doctor should still be prepared to remove all endo he finds at the time of surgery. All endo must be removed to give you relief. You mentioned he was going to do a laparotomy and sometimes endo is extensive enough with adhesions and all that it is necessary, however, if he is able to remove the endo that he finds (if he finds any) without doing the laparotomy you will have a quicker healing time. However, it is sometimes necessary to do the laparotomy due to the location of the endo implants or adhesions or organs that are stuck places they shouldn’t be, as well as any other problems that might crop up. He should be able to start with a laparoscopy though and then proceed with the laparotomy if necessary. Below are the links on IC and Adeno… I hope they are helpful. I wish you the best and I hope you find relief soon. Interstitial Cystitis info: http://www.ic-network.com/ http://www.moonstar.com/~icickay/ http://www.ichelp.org/ Adenomyosis info: www.drcook.com/adca14.html http://www.centerforendo.com/news/adenomyosis/adenomyosis.htm Take care, Carey– John’s page: MENDO – Men and Endometriosis: http://www.geocities.com/HotSprings/Spa/8449/ Carey’s Endo Window with Endo Sister’s Survival Kit: http://www.geocities.com/HotSprings/Spa/8509/
– Hide quoted text — Show quoted text – I haven’t posted here in a long time, but I’m hoping someone here can help me. I am now on my 2 gyn, the first one put me on bcp’s. He said I probably have endo, and the pill should help with the pain. I took it for 3 months getting sicker and sicker, but hoping it would start helping. I went in to see my gi( btw, I have crohns disease) who told me to stop taking them because they were definately flaring my cd, and referred me to another gyn who specializes in things like endo. He seemed quite knowledgable, and very caring. He was very gentle while doing the internal exam, and said something is very wrong and left the room. When he came back he said he’s sending me to a urologist to get urodynamics and a cystoscope done. He thinks I might also have ic. He then went on to say that surgery will be inevitable,something about adenomyosis(sp) and chances are they will have to take out my uterus. I tried asking him questions but he just answered them generally and pretty much said he needs to know what the urologist says first. This really scares me, I’m grateful my DH came with me because I don’t think I could have handled it alone. I don’t understand why they’d take my uterus. I’m also not ready for another surgery(mentally) I already have had 2 for my crohns and would have to have another laporotomy, which would mean many weeks of healing. So my question is, does this sound right?? I really don’t want any more taken out of me then necessary. I don’t understand this adenomyosis either, and why he’d think I have it.. Any opinions or suggestions would be grately appreciated. I am very confused and terrified at the same time. TIA, Jewel
Response:
Jewel, First of all, why does he think you have IC? Do you have bladder symptoms? It is my understanding (as they were saying I had it based on urodynamics, but the Cysto didn’t say for sure) that they need to do these tests before they can say. If you have symptoms of burning, spasms, etc. but the urine cultures are negative for bladder infection, this can suggest it, but can’t say for sure that it is IC. The uterus can have a boggy feeling and be enlarged with adenomyosis. Could be this is what he is feeling. My advice to you is if you don’t want a hyst., don’t do it. The only way to diagnose Adeno is with a hyst. and pathological examination of the uterus. Also, if this Dr. can’t do the surgery via laparoscopy, then I would question this as well. The great majority of surgeries, even hysts. can be done via laparoscopy. I know a woman that had a hyst. done by laparoscopy, and her uterus was defined as being, "a sack of golf balls." I saw the pictures and it was amazing to see. It was quite large. Maybe another opinion with another Dr. is in order. I know this is where you were sent, but if you have any reservations at all, then get another opinion. This is your body and your right! Feel better. Robin Path: lobby!newstf02.news.aol.com!portc01.blue.aol.com!logbridge.uoregon.edu!ne
wsfeed.direct.ca!look.ca!newshub2.rdc1.sfba.home.com!news.home.com!news1.r dc1.mb.home.com.POSTED!not-for-mail – Hide quoted text — Show quoted text – Newsgroups: alt.support.endometriosis Lines: 30 X-Priority: 3 X-MSMail-Priority: Normal X-Newsreader: Microsoft Outlook Express 5.50.4133.2400 X-MimeOLE: Produced By Microsoft MimeOLE V5.50.4133.2400 NNTP-Posting-Host: 24.66.50.243 X-Trace: news1.rdc1.mb.home.com 975783443 24.66.50.243 (Sat, 02 Dec 2000 10:57:23 PST) I haven’t posted here in a long time, but I’m hoping someone here can help me. I am now on my 2 gyn, the first one put me on bcp’s. He said I probably have endo, and the pill should help with the pain. I took it for 3 months getting sicker and sicker, but hoping it would start helping. I went in to see my gi( btw, I have crohns disease) who told me to stop taking them because they were definately flaring my cd, and referred me to another gyn who specializes in things like endo. He seemed quite knowledgable, and very caring. He was very gentle while doing the internal exam, and said something is very wrong and left the room. When he came back he said he’s sending me to a urologist to get urodynamics and a cystoscope done. He thinks I might also have ic. He then went on to say that surgery will be inevitable,something about adenomyosis(sp) and chances are they will have to take out my uterus. I tried asking him questions but he just answered them generally and pretty much said he needs to know what the urologist says first. This really scares me, I’m grateful my DH came with me because I don’t think I could have handled it alone. I don’t understand why they’d take my uterus. I’m also not ready for another surgery(mentally) I already have had 2 for my crohns and would have to have another laporotomy, which would mean many weeks of healing. So my question is, does this sound right?? I really don’t want any more taken out of me then necessary. I don’t understand this adenomyosis either, and why he’d think I have it.. Any opinions or suggestions would be grately appreciated. I am very confused and terrified at the same time. TIA, Jewel
I am *not* a Medical Doctor (MD) or *any* other type of Medical Professional. PLEASE consult your own Dr. for medical advice. The information posted is information I have learned from researching or learning from my own disease.
Response:
I haven’t posted here in a long time, but I’m hoping someone here can help me. I am now on my 2 gyn, the first one put me on bcp’s. He said I probably have endo, and the pill should help with the pain. I took it for 3 months getting sicker and sicker, but hoping it would start helping. I went in to see my gi( btw, I have crohns disease) who told me to stop taking them because they were definately flaring my cd, and referred me to another gyn who specializes in things like endo. He seemed quite knowledgable, and very caring. He was very gentle while doing the internal exam, and said something is very wrong and left the room. When he came back he said he’s sending me to a urologist to get urodynamics and a cystoscope done. He thinks I might also have ic. He then went on to say that surgery will be inevitable,something about adenomyosis(sp) and chances are they will have to take out my uterus. I tried asking him questions but he just answered them generally and pretty much said he needs to know what the urologist says first. This really scares me, I’m grateful my DH came with me because I don’t think I could have handled it alone. I don’t understand why they’d take my uterus. I’m also not ready for another surgery(mentally) I already have had 2 for my crohns and would have to have another laporotomy, which would mean many weeks of healing. So my question is, does this sound right?? I really don’t want any more taken out of me then necessary. I don’t understand this adenomyosis either, and why he’d think I have it.. Any opinions or suggestions would be grately appreciated. I am very confused and terrified at the same time. TIA, Jewel